MS Sucks!

One of the things that this blog can do for me is act as a place I can record my MS "attacks". That's what I'll choose to call them. Some of my symptoms will flare up, making my life miserable for a while. Like I've said in previous posts, the physical symptoms slow me down and bother me, but what really scares me is slipping into that mental mode I was in right before I was diagnosed - short attention span, loss of short-term memory and physical / mental exhaustion.

Went to the Skuz meeting on Friday. More of the same, with no resolution to anything. They were focused on getting the signature on the permission chit for changing Blueberry's meds to Prozac. I was focused on getting pipelines built from their side so there was information flow from them to us, using the argument that we couldn't sign the med permission unless we had the information they took to the doctor, and the writeup of what the doctor was recommending. Was mildly effective at it, but still haven't received anything. Anyway, the meeting was moderately stressful for me, and I crashed about 2 hours after I got home. Exhaustion, upper back pain. No energy at all. Spent the afternoon in the reclining chair. Funny, there was very little shakiness though.

I guess the "trigger" was the stress of the meeting. Didn't feel overly stressful though. I wasn't emotional in the meeting. I stayed on the "big arrow" stuff. However, I was dreading going. Had some concerns that I'd represent myself and Wifey to both our satisfaction.

Saturday started OK, but as the day wore on I felt the same symptoms. Usually, an "attack" lasts a max of 48 hours. Still feeling the same things today though. Again, back pain, loss of energy, very little shakiness. A bit of eye chatter in the morning. A new revelation came from looking at the light tube in the HP scanner. When I looked away the white light split into white, red and green. With perfectly spaced bars. Never experienced that before, even when the symptoms were at their height before the steroid treatment.

I'm a big believer in working with what I have though. The problem right now is figuring out whether what I have will be good enough. I figure I have a year today now to figure it out, then I have to start seriously think about filing for disability or trying to get a light duty job. From what I see in the economy, I'm thinking that it will probably be the former, as there won't be any jobs to be had.

So that's the update on my MS stuff. I'll try to mention it in a post when I see the current symptoms going away.